Tag: community foundation

News

IHSA website launch

International Heart Spasms Alliance (IHSA) was founded by a group of four women which had a common goal: to do better. Terri Shumaker, Cindy McCall, Sarah Brown, and Annette Pompa all live in different parts of the world and have never met face-to-face.

Over a period of five years, these women have created and participated in different Facebook support groups which united them in a common purpose. They may have different backgrounds and experiences, but this medical condition appears to be as elusive as a unicorn in fairyland. There is no cookie cutter approach because each person is unique and does not present the same symptoms.

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Around The World

Real Patient Stories

Don’s story

I consider myself one of the lucky ones.

I was a runner, triathlete, skier, scuba diver, etc. before my problems got severe enough to seek medical help.

Most doctors took my health decline seriously from the start.

Later, it was not uncommon for doctors who were unaware of my athletic endeavours to assume my subsequent lack of fitness was the cause of my condition rather than the result.

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Mary’s story

First came the headaches – worse than migraines – then the shortness of breath and having to lay down after crossing the room.

Five months after my symptoms began, I was diagnosed with a 99% blockage in my LAD and 99% blockage in an artery branch off that.

I was stented and, in doing so, they jailed an artery. I was given Metoprolol and I got worse.

I underwent another Angiogram, and all was fine, so they changed my medication and I began to use my Nitro more.

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Lynn’s story

I had my first spasm when I was just a young child and continued for almost 50 years with no diagnosis. I always assumed everybody had flushing feelings throughout their body, and hot flashes accompanied by chest pain.

It wasn’t until I was walking my dogs with my sister, one day, and we were going up a steep incline and I couldn’t keep up. I asked her if she felt chest pains when she walked up hills. She looked at me like I was crazy and told me: No!

I then realized something might be wrong with me.

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